The Malamulele Onward Carer-2-Carer Training Programme (C2CTP) trains parents/caregivers of children with CP to run a series of five workshops on CP for other parents/caregivers. The programme exists to increase the effectiveness and long-term impact of the organisation’s other activities which include providing and strengthening services to children with CP living in rural areas.

CP is a complex condition that can have devastating effects on a child and their family through the progressive damage that it inflicts on a child’s body over time. The value of the C2CTP lies in its ability to provide accessible information on CP to parents, presented in their own language, in a way that they can understand and by a person who is facing the same challenges with their own child – ultimately equipping them with the ability to minimise the effects of CP on their children.

The C2CTP has been developed over three years by means of piloting the material with a group of 21 parents from 10 rural sites, representing five different languages and cultures. This process involved learning what information is important for a parent to understand in order to have a long-term impact on their child’s well-being and how this information should be communicated in order to achieve complete understanding. In doing so, a completely new vocabulary for CP has been developed that not only makes it easier for parents to understand the condition, but also allows for translation into any language.

 

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